Wednesday, May 7th, 2025
2:00pm - 3:15pm
Room 613T
Concurrent Session:
There’s nothing more natural than supports for decision-making: Families using the CVA to reflect on recognizing capacity
There’s nothing more natural than supports for decision-making: Families using the CVA to reflect on recognizing capacity
Having your capacity to be involved in decision-making recognized, and autonomy respected, is widely acknowledged as one of the ‘Good Things of Life’. Yet people with developmental disabilities are often considered to lack this capacity and thus, in many jurisdictions, have their decision-making status removed and transferred to another, despite mounting evidence that all people show preferences and communicate their will in nearly all situations. Furthermore, evidence shows that with good support, people can continue to grow in their decision-making competencies and be increasingly involved in directing their own lives. Our Recognizing Capacity project has sought to offer families connected to DFR an opportunity to explore, notice and articulate important ideas around the decision-making capability of their loved one by articulating the culturally valued analogue - the typical ways most people make decisions. Over time, families begin to see parallels with their own family members and explore more deeply their current and growing voice. Using the wisdom and learning from families who found ways to support their loved one’s capacity to be seen, and identifying some practical strategies, as well as critical mindsets, one can enable people’s capabilities to be recognized and acknowledged.
Presenters
Laura Powell​
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Laura Powell started her working life in what was then called the ‘special needs division’ of a UK County Careers Service where she quickly became aware of the alternate, parallel path for teenagers leaving school with labels. After moving to the Republic of Ireland, Laura worked for nearly a decade with agencies serving people with an intellectual disability. In 2019 she moved to southern Ontario, Canada and now works with Durham Association for Family Resources and Support (DFR). She has a particular interest in exploring the ordinary ways people give and receive supports for decision making, and how the capacity of people with cognitive impairments can be recognized and understood.​
Janet Klees
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Janet Klees has been involved in the lives of people with disabilities, their families, and allies for 40 years. Since 2014, Janet has been the Executive Director for the Durham Association for Family Resources and Support in Ontario, Canada. Prior to this, Janet worked with the family-governed Deohaeko Support Network for over 20 years. Under her current role, Imagining Home, a family group with a focus on home and housing partners with families to successfully imagine and plan for typical, valued housing options around the Region. She is an author and continues to meet, share and learn with families with a focus on bringing about roles, relationship and places of belonging into the lives of people and communities.
Tracy and Allan MacGillivray
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Tracy and Allan MacGillivray are the parents of two sons, both of whom they consider to be a huge blessing to their family and community. At this conference they will be focusing on the youngest, TJ, and their journey up to this point in helping him to discover who he is, where he belongs in the world, and some of what was learned along the way. Coming to understand, hearing and augmenting TJ’s voice, has led them to ensuring that he has a home of his own, is a valued member of his church and community, and that they follow his lead closely on many medical issues that require his attention. Due to their own experiences and finding out what is helpful along the way, Tracy and Allan are interested in sharing their learning with other families.